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Both HIV-negative and never-tested participants overestimated the effects of HIV on sexual wellbeing, relationship quality, sexual pleasure, fear and stress during sex. More HIV-negative (51%) and never-tested (65%) participants expected difficulties. In addition, both HIV-negative and never-tested participants overestimated the burden of disclosure or non-disclosure: 66% of participants living with HIV reported the burden as low or medium, whereas 55% of HIV-negative and 67% of never-tested participants expected a high burden of disclosure.įorty one per cent of participants living with HIV reported difficulties getting into a steady relationship due to living with HIV. Fear of infecting family, friends and colleagues was reported by 23% of HIV-negative and 24% of never-tested participants, compared to 8% of participants living with HIV. Furthermore, 31% of never-tested men and 23% of HIV-negative men said they do not trust U=U.Įighteen per cent of participants living with HIV reported often experiencing an emotional burden from HIV while the anticipation of this was higher among HIV-negative men (51%) and never-tested (56%) gay and bisexual men. HIV-negative and never-tested men reported less confidence with only 22% of never-tested men and 43% HIV-negative men trusting the U=U message. When asked about taking HIV medication, 79% men living with HIV said they were used to taking pills every day, whereas only 50% of HIV-negative and 42% of never-tested men thought they would get used to it.Īlmost all participants living with HIV had an undetectable viral load and 71% trusted in the U=U message. When asked about the severity of having HIV, 31% of HIV-positive men said it was very serious, compared to 76% of HIV-negative and 83% of never-tested men.
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Most men living with HIV said the quality of their lives hasn’t changed after HIV diagnosis while 14% reported an improvement and 17% a deterioration. Responses from 1510 men who completed the survey were included in the analysis: 950 (63%) of the respondents were HIV negative, 438 (29%) were HIV positive and 122 (8%) had never tested for HIV. Qualitative research methods include interviews, focus groups and participant observation. It wouldn’t ask how many people use them or collect data in the form of numbers. Qualitative research might ask questions about why people find it hard to use HIV prevention methods. Qualitative research is used to explore and understand people’s beliefs, experiences, attitudes or behaviours. This questionnaire was circulated online to assess the experiences of gay and bisexual men living with HIV, while HIV-negative and never-tested gay and bisexual men were asked about their perceptions of living with HIV.
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The data from these qualitative interviews were used to identify the implications of living with HIV and to develop a questionnaire with 39 items. Health-related consequences, the burden of disclosure, the impact on sex and relationships, and practical consequences were also overestimated according to the study, conducted by researchers from the HIV Transmission Elimination Amsterdam Initiative, published in the journal AIDS and Behavior.ĭespite the current status of HIV as a manageable and treatable chronic health condition with effective and well-tolerated antiretroviral therapy (ART) and the Undetectable=Untransmittable (U=U) message, the consequences of living with HIV are still overestimated by many people.Įxperiences of living with HIV in the Netherlands were collected via 18 in-depth interviews with gay and bisexual men diagnosed with HIV between 20. HIV-negative and never-tested gay and bisexual men in the Netherlands were found to overestimate the psychosocial implications of living with HIV.